BBC News - Should my hereditary disability stop me having a baby?

 

Jono and Laura's genetic dilemma

For Jono Lancaster, who has Treacher Collins syndrome, the decision about whether to have a baby or not is agonising.

At the age of 26, Jono is happy with how he looks, but the genetic disorder that affected the way his facial bones developed in the womb has caused him years of anguish.

His condition means he has no cheekbones - so his eyes droop downwards - and he has problems with his hearing, so has a bone-anchored hearing aid.

It has resulted in years of bullying, several operations and numerous hospital visits. It also led his parents to give him up for adoption 36 hours after he was born.

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Full article at bbc.co.uk

 

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